NRAS Logo
Logged in as: pedro-pmc Search | Moderate | Active Topics | My Profile | Members | Logout

New Topic Post Reply
NOT REALLY A NEWBIE JUST A NAUGHTY ONE Options
Kathleen-7
#1 Posted : Monday, January 31, 2011 5:03:59 PM Quote
Rank: Member

Groups: Registered

Joined: 2/11/2010
Posts: 19
Location: chepstow wales
HELLO EVERYONE MY NAME IS KATHLEEN KATE TO MY FRIENDS, I HAVE HAD RA FOR OVER 7 YEARS AND ONLY FOUND NRAS
A YEAR AGO, I AM NAUGHTY AS I DO LOG ON AND FOLLOW PEOPLES PROGRESS ALSO IF I DEVELOPE YET ANOTHER NEW ACHE OR PAIN OR WEIRED THING GOING ON IN MY BODY I WILL LOG ON TO SEE IF ANYONE ELSE HAS THE SAME SYMPTON!! AND THANKYOU
TO ALL OFTEN FIND YES THEY HAVE AND IT REALLY DOES HELP. ISPENT THE FIRST YEAR IN BED AND STILL SPEND MOST OF THE TIME ON MY BED BUT DO GET OUT AND ABOUT WHEN I CAN AS YOU ALL KNOW THE PROBLEM IS WALKING OR SHOULD I SAY NOT ABLE TO!
AND I DONT LIKE GOING IN MY WHEELCHAIR IT MAKES ME FEEL DISABLED HA!HA!HA!LOL I AM 70 YEARS OLD GOING 0N 40! IWORKED UP TO THE DAY I COLLAPSED AS A GUEST RELATIONS MANAGER IN A LARGE HOTEL AND LOVED IT MADE LOVELY LONGSTANDING FREINDS FROM ALL OVER THE WORLD AND MISS IT SO MUCH, I AM ON MY OWN NOW BUT HAVE A LOVEING DAUGHTER AND HER FAMILY AND A LOVEING SON AND HIS FAMILY MY GRANDCHILDREN ALL GROWING UP TOO FAST NOW ARE WONDERFULL ALSO I HAVE THE SUPORT OF GREAT FREINDS, DOCTORS AND RHEUMATOLOGIST AND NURSES SO I FEEL I AM BLESSED IN THAT RESPECT. I HAVE TRIED MOST OF RA DRUGS THE LAST BEING EMBREL TWICE BUT UNFORTUNATELY NONE AGREE WITH ME SO HAVE BEEN ON PREDNISOLONE ALL THE TIME AND PLEASED TO SAY ALTHOUGH ON HIGH DOSES APART FROM THINING OF MY SKIN NOT MANY SIDE EFFECTS AND THEY ARE MY SAVEING GRACEThumpUp AT THE MOMENT I AM TRYING TO COME DOWN ON THEM SO ITS FINGERS CROSSED. SO MANY OF YOU ARE GOING THROUGH SO MUCH I FEEL FOR YOU ALL , I KNOW THE NEVER ENDING PAIN . THE FEELING SO VERY VERY ILL THE SWEATS THE COLD FEET ETC AND THE FRUSTRATION AT KNOWING WE JUST HAVE TO GET ON WITH IT, BUT WITH EVERYONE OUT THERE IN THE SAME BOAT SUPORTING EACH OTHER IS THE BEST MEDICINE OF ALL, I WISH YOU ALL GOOD PAINFREE AND HAPPY DAYS,


KATHLEENCool PS YES I DO HAVE A SENSE OF HUMOURWHERE WOULD WE BE WITHOUT ONE
FORGOT TO SAY I AM A YORKSHIRE GIRL BUT HAVE BEEN LIVEING IN CHEPSTOW BY THE 7 BRIDGE FOR 40 YEARS
Lorna-A
#2 Posted : Monday, January 31, 2011 5:44:10 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2010
Posts: 914

Hello there Kate,

I am Lorna, I have had RA for just over 3 years, I was very ill at the start of my journey, but having been on the triple therapy I keep really well now as long as I do not overdo things.

It's nice to see you posting welcome to our club no-one wants to join Smile Everyone is lovely and we all help one another. Glad to hear you are a young 70 with a good sense of humour it will keep you young.

I am 51 and feel great most of the time, I have been poorly this last week, with a sore throat and no voice and a very sore eye. But hey ho things could be worse. I have been more worried about my dad who is in hospital.

Glad to see you posting, keep it up and we will all get to know you better.

Take care Lorna x Smile

suzanne_p
#3 Posted : Monday, January 31, 2011 7:28:10 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 8/25/2010
Posts: 1,289
Location: Buckinghamshire
hi Kate,

welcome aboard.

nice to hear you're a young 70 ...i'm 57 young in the head not sure about the body at the moment though .. lol,

i was diagnosed last June and currently on Methotrexate and Hydroxy which haven't worked for me, so in the process of going onto Anti-TFN within the next month or so, so here's hoping !!

nice to hear you have a good support network around you ... i have to and wonder where i would be without it.

keep posting and let us know how you are doing,

take care,

Suzanne x
Kathleen-7
#4 Posted : Monday, January 31, 2011 7:31:35 PM Quote
Rank: Member

Groups: Registered

Joined: 2/11/2010
Posts: 19
Location: chepstow wales
HI LORNA SORRY TO HEAR THAT YOU ARE HAVEING A BAD WEEK AND HOPE YOUR THROAT CLEARS UP AND YOU HAVE YOUR VOICE BACK SOON ALSO YOUR EYE, I AM WAITING FOR CATTERACS DOING SEEMS DRY, PAINFUL EYES ARE YET ANOTHER GIFT FROM RA.
SORRY TOO TO HEAR ABOUT YOUR DAD AND WISH HIM WELL SOON ADDED STRESS DOESNT HELP RA SUFFERERS!
TAKE CARE KATE
LynW
#5 Posted : Monday, January 31, 2011 7:38:38 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Kate

Welcome to the forum. A great place to be for support and information; lots of folk, lots of knowledge and a wealth of tried and tested experiences! I am sure you already know all this!!

I'm Lyn, married to Mike, we have four children, Abby 23, Ian and Jake 17, and Louis 16. All four in various stages of education! We live in Thornton Cleveleys in north west Lancashire. I was diagnosed with sero-negative RA nearly 23 years ago and have since run the gamut of medication and had several surgical procedures along the way. Currently on Enbrel, Leflunomide, Prednisolone and Naproxen, Amitriptyline and a jolly assortment of pain killers! Struggling at the moment after knee surgery last summer, two lots of knee aspirations and joint injections in 7 weeks and a further referral to Orthopaedics. But heyho...

I had surgery on both eyes a couple of years ago due to damage caused by long term steroid use (now down to 3ml prednisolone a day!). The lenses were replaced, as they do in cataract ops, and my vision is much improved. Definitely operations worth having but don't forget to mention the steroids when you go in! Dry eyes can be caused by the RA but also by the medication.

Look forward to getting to know you Smile

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Kathleen_C
#6 Posted : Monday, January 31, 2011 9:39:20 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,689
Location: Durham
Hi Kate, and welcome to the forum - I`m glad you`ve decided to post, and I`m really sorry the drugs haven`t worked for you.I`m pleased your family are so supportive - I don`t know where I`d be without mine, and I love them all to bits.


I bet your job was really interesting, meeting all sorts of different people.

I`m Kathleen, diagnosed 5 years ago, and currently on humira along with various other meds for this and that.I live in Durham, with my husband Nick, and we have two sons & two gorgeous little grandsons.

Keep posting!

Kathleen x

Rose-B
#7 Posted : Monday, January 31, 2011 9:54:21 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/20/2010
Posts: 1,749
Location: Somerset


Hello Kate,

Welcome to the Forum but sorry that you have been so poorly and not able
to take the drugs. Glad though the steriods help you. You do appear to have
a great Family who support you.

I am Rose from Somerset and nearly 57. I was off work for 7 half months
till Nov last year. I have been on a gradual return but at the moment only
up to 12 hours. I cant see me making it back full time. My TNF being delivered
on Wednesday of this week so will be starting them very soon - so fingers crossed.

Keep posting

RoseBigGrin
Kathleen-7
#8 Posted : Monday, January 31, 2011 10:02:26 PM Quote
Rank: Member

Groups: Registered

Joined: 2/11/2010
Posts: 19
Location: chepstow wales
HI ROSE THANKYOU FOR THE WELCOME AND GOOD LUCK WITH TNF KATE
Egg Lady
#9 Posted : Tuesday, February 01, 2011 9:08:20 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 10/21/2010
Posts: 69
Location: North Devon
Hello Kate

Welcome. My name is Julie I am 55 this year and I live in Devon with my partner David, Daughter Teresa 23 and stepson Ben 18. Was diagnosed with RA in October 2010 and been on Methotrexate for 6 weeks. I feel it is having some good effect so fingers crossed.

You sound a lively soul and no doubt that has helped you through lots of bad times as well as your lovely family.... I need anti depressants! Although I used to be lively and active, now my mind does overtime but my body gives up on me! Laugh

Look forward to seeing your posts now

Take care Julie x



Good advice is best followed by the art of listening

AnnieB
#10 Posted : Tuesday, February 01, 2011 10:30:58 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 5/19/2010
Posts: 384
Hi Kate,

So pleased you found this site and have started posting.

I was diagnosed last May and found the site almost immediatley and it helped me so much in the beginning trying to get my head around RA.

I'm Anne 50 years old, married with two boys aged 19 and 20 and a foster boy aged 9. I work part time now in a school for children with severe special needs, don't think I would have the energy to work full time again.

Currently on 25mg weekly MTX and having more good days than bad.

Look forward to reading your posts.

Anne x
dorat
#11 Posted : Tuesday, February 01, 2011 10:44:25 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 3,157
Location: Huddersfield
Hi Kate,

Welcome to the forum!
I'm 61, married with one daughter (21yrs).
Looking forward to hearing a lot more from you.

Love, Doreen xx
jeanb
#12 Posted : Tuesday, February 01, 2011 11:44:01 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 3,006
Location: Timperley
Hi Kate

Welcome from one oldie to another!!! I'm almost 70 and charge around in a wheelchair/scooter too!! Great fun!!

Looking forward to getting to know you.

We try to have a laugh on here as well as offer encouragement, friendship and support.

Take care

Love Jeanxx
Users browsing this topic
New Topic Post Reply
Forum Jump  
You can post new topics in this forum.
You can reply to topics in this forum.
You cannot delete your posts in this forum.
You can edit your posts in this forum.
You cannot create polls in this forum.
You cannot vote in polls in this forum.

SoClean Theme By Jaben Cargman (Tiny Gecko)
Powered by YAF 1.9.3 | YAF © 2003-2009, Yet Another Forum.NET
This page was generated in 0.158 seconds.